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Medicaid Demographic Data Collection

During the last report cycle, the Commission assessed the usability of Medicaid race and ethnicity data. In MACPAC’s March 2023 Report to Congress, the Commission recommended updating the model single, streamlined application race and ethnicity questions and developing model training materials to encourage responses. In addition to these recommendations, the Commission identified a need for additional work related to the collection and reporting of additional demographic data. MACPAC will build on this body of work and focus on the collection of limited English proficiency (LEP), sexual orientation and gender identity (SOGI), and disability data.

This presentation provided background on how the Centers for Medicare & Medicaid Services and state Medicaid programs use demographic data, how these data are currently collected as part of federal administrative and survey data collection efforts, and the limitations with each of these data sources.